Thursday, November 06, 2008

Chronic fatigue

This morning I had an appointment at the CFS Centre in Amsterdam, a specialized centre for chronigue fatigue. In advance I had my blood tested and filled in a pile of questionnaires. Today I went to see dr. Vermeulen, the director / coordinator of the CFS Centre. He asked a lot of questions and explained several things. He was very friendly and made me feel at ease.
My case is complex, but that applies to all their patients. Before I do the physical test the team will discuss my problems and do a thorough analysis. I have appointments with the cardiologist and the internist in December. We'll see where we go from there.
Finally... I'm taken seriously! I feel so good about that.


  1. Good luck with your health problems. I've had two years of trying to get my body understood by doctors so I sympathise!

  2. I hope they can figure it out and help you, Tink!

  3. Hope everything gets sorted and you soon feel better.

  4. Hurray for looking for solutions! YES!! I hope he is able to help.

  5. Oh, sorry to hear that you got such problems. Me too have similar ones, since I got diagnosed with Fibromyalgia. I hope you get some help from the doctors. I didn't.

    Something that have helped me a lot, which no doctor want to hear, is an alternative product that is called "Dr. Donsbach Mivitotal Flex" over here in Sweden. I have no idea if you have it there, but maybe worth to check up?

    I got from feeling almost unconscious to actually be awake at least. It took less a couple of weeks before I noticed I was getting better, but it can take up to 3 months before you really notice it.

    It's no dangerous stuff, just all vitamins, minerals and antioxidants in a kind of juice, giving you extra energy and more resistance against sickness. It's used and well known within sports too. It's not only me that has used it with success, it's many. I think it's really worth it.

  6. Good luck on your treatment.

  7. It is so wonderful to have someone finally take you seriously and listen to you. I hope the testing goes well and they are able to help you.

  8. I also have chronic fatigue. I was diagnosed with Epstein Barr after the birth of my daughter 4 years ago. It's a terrible thing to deal with. Keep your chin up. I hope things get better for you. I know how you feel. Take care.

    P.S. I found you over at Life in the Urban Zoo. I love the name of your blog. So cute!

  9. Good luck with everything! Between my severe asthma (daily attacks) and my brother's fiber myalgia, I totally know what it's like trying to get it all figured out!

  10. I'm so glad you are receiving the care you need. I hope all goes well for you.

  11. Hi Tink,

    Glad to hear your condition is taken seriously and looked at by experts. I hope the tests aren't too bad or tiring and they will really find something that can help you. Or at least exclude some draining and pointless treatments.

    I was diagnosed with CFS too, almost 3 years ago. At first my condition improved but the last year or so there has been little or no progress. They did find a vitamin shortage recently, B12 and folic acid. Both are important for your blood cell count (shortage causes a type of anemia, which causes/aggrevates fatigue), a lack of B12 is also bad for your nerves and can cause pain. Sounds familiar, huh? It's a simple test (draw some blood) and simple treatment (vitamin pills or injections) so I think it's worth looking in to, if they haven't done so already.

    It's too soon to say if it's working for me and I don't expect it to be the magical cure, but even the slightest improvement is ofcourse welcomed.

    Good luck with the tests, sterkte!


  12. How'd the tests go?

    I came back also to add a website of a real life and internet friend of mine. She's a solitary witch in Luxumbourg and she does Pagan computer art.

    Michelle of Crowsfeet


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Love, Tink