Friday, October 20, 2006


Ron and I spent the whole afternoon in the hospital. The internist suspects I have sarcoidosis, a complex multisystem autoimmune disease which can affect the lungs, skin, joints, eyes, brain, and other soft tissue organs in the form of multiple inflammations. At this time, there is no known cure for sarcoidosis. Hooray....
I have to visit more specialists and do more tests a.s.a.p. and at the end of next week I get the "verdict". For now I have Diclofenac against the pain and inflammations, and another medicine to prevent stomach problems.


  1. Ouch! I hope you're feeling better soon.

  2. hi Tink - well at least hopefully there's some consolation in their knowing what it is - hope the remaining tests go well and as painlessly as possible... keep us all posted, meanwhile sending lots of comfort vibes.

  3. I'm sorry your not feel well, wishing you a speedy recovery.

    I never heard of "sarcoidosis"

  4. Can't say I've ever heard of sarcoidosis. Even if there is no cure, hopefully they have some form of pain relief for you, and that will allow you to live normally and comfortably again.
    Sending you hugs and best wishes.
    Take care, Meow

  5. Thank you all! The Diclofenac does its work very good.
    I had never heard of sarcoidosis before either. It's not a rare disease, but very unknown it seems.

  6. I've never heard of that, either. That's really rotten, and I'm sorry. I hope the medication will help--

  7. I've never heard of sarcoidosis either.

    Sending hugs and well wishes to you.

    Take care

  8. Im so sorry. Sending healing thoughts your way...

  9. Well as you know I've heard of it.... unfortunately. I'm glad the Diclofenac works for you! Please think really hard before you start on Prednisolon may they ever suggest that. Been there, done that and trust me whenever there's another way, avoid the Prednisolon!!

    Take care now.

  10. Jemig Tink, van deze term heb ik eigenlijk nog nooit gehoord, maar ik weet wel dat auto-imuun ziekte erg kan zijn, echt vreselijk...
    Weten ze ook niet hoe het is ontstaan? Is het genetisch? Of moeten die testen dat allemaal gaan uitwijzen?
    Heel veel sterkte Tink, ik denk aan je - en ik hoop echt dat de doctoren wat kunnen vinden zodat je je beter gaat voelen.


I'm really sorry I had to enable comment & word moderation. Loads of spam comments spoiled the free commenting, but please... don't let it stop you. I love every non-spam comment!
Thanks for visiting.
Love, Tink